Part of the DNA Day 2014 activities is a webinar titled Family Health Histories: More than Just Asking Questions and Getting Answers, broadcast on Tuesday, April 29 at 12pm. Presenters will include Erin Torti, MS, CGC, from the Saint Louis University Division of Medical Genetics, and Josefa Villarrubia, a member of family affected by Marfan syndrome. Eligible webinar participants will receive a 1.0 nursing contact hour. If you’d like to register for the webinar, visit http://www.illinoisnetwork.org.
Over 160 public health nurses, other health professionals, and others interested in genetic health participated in our webinar in celebration of DNA Day on April 16, 2013. If you missed our program on newborn screening and family health history, including presentations by Michelle Gilats, a licensed genetic counselor and an engaging personal narrative from Marie Vonesh about living with Fabry Disease, you can view our recorded webinar here:
We are thrilled to see nurse Deb Piper and her department’s creativity in using the DNA Day IL 2013 materials. Staff at Bureau County Health Department are celebrating DNA Day IL 2013 by reviewing and distributing this year’s resources on family health history and newborn screening.
The LaSalle County Health Department has put this year’s DNA Day Illinois project materials to good use. Nurse Colleen Gibson has graciously shared one way she will celebrate DNA Day this year: with an informative and creative poster display. We hope her poster inspires others to find ways to integrate genetics into their health outreach!
Click here to view our flyer:
Register online here: DNA Day IL 2013 Webinar
Want to know more about DNA Day Illinois?
View our video about this year’s project:
Diseases are considered rare in the U.S. when they affect less than 200,000 people. When these diseases are combined, they affect about one in ten people in the U.S. The majority of rare diseases are genetic disorders. The list of rare diseases includes some disorders that are screened for in Illinois as part of the newborn screening public health program, including sickle cell anemia and congenital hypothyroidism. Rare Disease Day is celebrated to bring together this community that is at times isolated and raise awareness about the many rare diseases that impact our communities. For more information about Rare Disease Day, please visit http://rarediseaseday.us/. For more information regarding a an upcoming, free, 2-day conference celebrating rare disease research held in Baltimore, MD, please visit https://events-support.com/events/Rare_Disease_Day